Any help would be so very appreciated.

[Annabel]

Sorry to hear that mate. I hope Ted & your partner aren’t badly hurt.

could you get some respite care for Ted? Even a night or two of uninterrupted sleep could help you both recharge. Sorry if this is unhelpful, I just feel for you guys - my cousin’s boy is non-verbal & I know what those challenges are.

 

[teedee]

I wish you all the best with the struggles of you and your family. Donated.

 

[chippospur]

Hope my small donation helps your family through these tough times.

 

[matjcole]

£10 in the pot. Sorry its not more. Sleep deprivation is a killer and impacts all. As a Dad of two young boys I know the stress you must be under. I have everything crossed you all get the rest you need xx

 

[neogenisis]

Thankyou for the continued donations. We have talked about respite but unfortunately due to Teds personality if one of me or his Mum are not there I think it would do alot more harm than good for him. Hes not himself and I know why, his house has an anomaly in it and its not right and he is dealing in the only way he knows how.

 

[Spurs 1961]

Small gift sent and really hope it helps as you get to grips with a lifelong problem.

 

[Karol]

£10 added to the fund

Sorry it can't be more

 

[neogenisis]

After a night of being a dick.
This is the state of it this morning getting up for Nursery.

 

[Real_madyidd]

Sorry I have only just seen this. Donated. Don't ever hesitate to ask for help, you have enough to deal with without finances being on your minds.

You are doing a great job and frankly I have no idea how you do it.

 

[neogenisis]

First lot of money has come in and Teds bed is ordered. Hand made from a guy in Bradford. Cost alittle over £800 but has been made to a specific order and is 100% purpose built for Hulk Ted McCaptain Chaos. Mattress and bedding next, then we are decking out his bedroom to be more of a sensory room.
I will post again when the bed comes and its set up =)

 

[Johnny J]

Donated. I'm highly autistic - I scored basically the maximum in my assessment - and I know personally how hard it can make life.

I wish you all the best and hope things get easier. Autism can be incredibly hard for others to cope with, but ultimately it's another, unique way of being human. I hope your son shines in his own special way.

 

[neogenisis]

Donated. I'm highly autistic - I scored basically the maximum in my assessment - and I know personally how hard it can make life.

I wish you all the best and hope things get easier. Autism can be incredibly hard for others to cope with, but ultimately it's another, unique way of being human. I hope your son shines in his own special way.

Thankyou so very much. He is incredibly empathetic, he knows a smile or a cuddle can change the mood of the person he is dealing with. I am a type 1 Diabetic and when I take insulin I have to smile at him so he knows im ok.

 

[Johnny J]

Thankyou so very much. He is incredibly empathetic, he knows a smile or a cuddle can change the mode of the person he is dealing with. I am a type 1 Diabetic and when I take insulin I have to smile at him so he knows im ok.

Lovely to hear. One of the myths about autistic people is they don't have empathy. In fact, many autistic people have too much empathy and it can be overwhelming.

I'm sure you and he will discover other things he's incredibly good at, and things he'll find harder. All part of the journey. Let me know if I can ever help at all.

 

[alamo]

My son has Developmental Language Disorder (DLD) and some traits of autism, as well as possible ADHD, dyspraxia and dyslexia. So I very much feel your pain in terms of the associated struggles. In fact, PM me if there is anything you would like to talk through or discuss as he is 6 so I am (a little) further down the road than you, and may be able to offer some helpful advice or at least be a friendly ear.

One thing I would like to particularly stress, autism is not a disability. It is a difference, and in many ways should be considered as a gift. Top companies now actually actively recruit autistic staff because of the different, fresh, hoper-focused perspective they can offer. So perceptions are changing and autistic people are being appropriately recognised.

Obviously, that doesn't help you sleep! In terms of support, any family and friends you can get to help you will be utterly priceless. The demands of looking after an autistic child are desperately tiring. There just aren't enough hours in the day to fit in a full time job, be the father you need to be and - the part that gets sacrificed - look after yourself and your relationship with your partner,

Given your financial situation you shouldn't hesitate to apply for "Disability Living Allowance":

Disability Living Allowance (DLA) for children

Help for children under 16 with disabilities - DLA rate, eligibility, how to apply, claim form.

www.gov.uk

Mine was granted this month and was back-dated to January when I first applied. It is ~£400 a month which is a fraction of the cost of his school placement, specialist provision and so forth. Every little helps though so I would strongly recommend it.

Anyhow, good luck, stay strong and best wishes. £20 added to the fund, sorry it can't be more.

 

[neogenisis]

My son has Developmental Language Disorder (DLD) and some traits of autism, as well as possible ADHD, dyspraxia and dyslexia. So I very much feel your pain in terms of the associated struggles. In fact, PM me if there is anything you would like to talk through or discuss as he is 6 so I am (a little) further down the road than you, and may be able to offer some helpful advice or at least be a friendly ear.

One thing I would like to particularly stress, autism is not a disability. It is a difference, and in many ways should be considered as a gift. Top companies now actually actively recruit autistic staff because of the different, fresh, hoper-focused perspective they can offer. So perceptions are changing and autistic people are being appropriately recognised.

Obviously, that doesn't help you sleep! In terms of support, any family and friends you can get to help you will be utterly priceless. The demands of looking after an autistic child are desperately tiring. There just aren't enough hours in the day to fit in a full time job, be the father you need to be and - the part that gets sacrificed - look after yourself and your relationship with your partner,

Given your financial situation you shouldn't hesitate to apply for "Disability Living Allowance":

Disability Living Allowance (DLA) for children

Help for children under 16 with disabilities - DLA rate, eligibility, how to apply, claim form.

www.gov.uk

Mine was granted this month and was back-dated to January when I first applied. It is ~£400 a month which is a fraction of the cost of his school placement, specialist provision and so forth. Every little helps though so I would strongly recommend it.

Anyhow, good luck, stay strong and best wishes. £20 added to the fund, sorry it can't be more.

DLA has been applied for but its a long old wait.

 

[Chips]

Donated mate, best of luck with everything, great to see everyone supporting

 

[steffenfreundlovesme]

Small donation made - great to see the response to this - sending you and

 

[spursgirls]

Will all that you have going on with this and Mollie at the moment. I wouldn't mind you using my donation to buy yourself a bottle of wine. I think you and your wife have earned it.

 

[Stuart Leathercock]

Only just seen this thread. Read through it and now have very red eyes….

You and your other half are very special people and clearly look after your two fabulous kids really well.

Have donated £20. I hope that Ted feels really safe and secure in his new bed and that it has a positive impact on rhe families’ sleep.

 

[DCSPUR64]

I have just read this, I have a 28 year old autistic son.
We changed his bed, we put 2 slide in gates on each side with long pillows around them. Adrian feels much safer and when he feels well, wakes up only about 4 times a night. I hope this little advice helps.